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Ignorance is bliss
I’ve been having trouble thinking of what to write for my latest blog post. Not because I have ran out of things to talk about (those that know me will know that never happens), but because I’m...
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A father’s perspective
On Sunday, it will be Father’s Day in Australia so I thought it was time to get a man’s perspective on parenting a child with a terminal illness. So I asked my husband, Anthony, about his views on...
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The birth of new anxieties
Yesterday Anthony and I decided to let the world know that we are having another baby. I am currently 14 weeks pregnant and very excited that we will be having another baby, but also completely...
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Searching for peace of mind
When I started out this blog, I wanted it to be open and honest about what it’s really like to live knowing that your child has a terminal illness. As I discussed in my last post, finding out we were...
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Shifting priorities
Yesterday I was diagnosed with diabetes. Not the gestational kind that comes with pregnancy, but Type 2 diabetes, the kind that comes from years of too many bad foods and not enough exercise. It’s a...
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Passing the baton
When every day of your life revolves around keeping your child alive – be it administering the right medication at the right time, constantly monitoring them for physical changes and/or ensuring they...
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Reality bites
We have periods of time where Aidan’s disease doesn’t really impact on our everyday life and then there are other times, like the weekend just been, when it’s hard to ignore he is a sick child. On...
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Unexpected friends
Anthony and I attended a fundraiser on Friday night for the ward where Aidan receives his weekly platelet transfusions. It was a fun night filled with plenty of laughter and it made me realise just how...
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Today I’m grateful for…
Shopping for a friend’s birthday present this week, I stumbled across a gratitude journal. The idea of the journal is to find and record three things each day that you are grateful for. There have been...
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Is it exploitation?
I was approached last week by Aidan’s palliative care team to see if we would be interested in talking to the producer of a news program about our story. As always, when asked if we would be willing to...
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A kick in the guts
Mother guilt is neither helpful nor productive but that doesn’t stop it consuming me, and I’m sure many other mums, 90 per cent of the time. This week’s self reproaching comes in the form of why I...
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Why we’ve named our unborn child
From the moment Anthony and I found out we were having a boy we started racking our brains to come up with a name. Despite people telling us we had plenty of time, for us it was important the baby had...
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Keeping my head in check this festive season
So it’s one month until Christmas and I have to admit, I’m really struggling this week. I’d like to blame it on the pregnancy hormones but I know I always get like this before a big occasion. That...
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Proud to have a special son
It’s no secret that I have been dreading Aidan going to school next year. A mother’s natural instinct is to want to protect her child and this is one of the reasons why I have been so against it but...
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The miracle of Christmas … we’re at home!
The lead up may not have been ideal but at 5pm before the big day, I can finally breathe a sigh of relief that we will be home for Christmas. It’s been a week of uncertainty with Aidan’s illness not...
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2014 brings another bump in the road
Well 2014 certainly hasn’t started the way we hoped, with a hospital admission for me and three trips to hospital for Aidan. I had held high hopes for this year with Aidan starting school and the...
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Taking the easy way out
Anthony and I started Lite n’ Easy* this week to mixed reactions from family and friends. Knowing our finances are limited the first reactions we get is, “It’s so expensive”. Indeed it is taking a...
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Baby number 2 brings drama and happiness
It’s been a week since Ollie, the newest addition to our family, arrived and what a week it has been. Ollie was delivered just one day shy of reaching 34 weeks gestation and is consequently in the...
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A day we never thought would come…
Today was a big day – Aidan’s first day at school! If someone had told me four years ago that Aidan would make it to primary school, I would never have believed them. It is such a testament to the hard...
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When ‘no’ is the hardest word
Ollie was discharged from hospital last Monday and this last week has been a blur of feeds, tidying the house, catching up with family and friends, school pick ups and drop offs and of course, trying...
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